Not much to report, however...
Today marks the one year anniversary of the first stage of Katie's surgery. It hardly seems possible that a year has gone by. The memories are so clear; the ups and the downs, but the blessed results are what stand out in our minds! We are unceasingly thankful to the Lord for how He has blessed Katie, and our whole family is ever mindful of God's divine care over us.
We are so blessed!!!
Justin Conn's surgery went well. He only had to have one surgery. We are grateful, along with the Conns, for the Lord's blessings in this.
God is so GOOD!
Wednesday, March 19, 2008
Thursday, March 13, 2008
Results of Katie's One Year Checkup
The visit with the doctor went well. However, we received some new and different information than what we thought we were going to hear. Rather than beginning to gradually take Katie off the medication, he said to keep her on the current dose until after another Video EEG. Yes, that is the 24 hour EEG where Katie and mom and dad get to spend the night and monitor brain waves. YIPEEE! The doctor said that the regular EEG Katie had back in November doesn't give them enough information to make a medication decision. The VEEG will give them the proper information concerning possible seizure activity.
Another thing he said, and we tried not to make a big deal out of this in front of Katie, is there is a possibility that, even after all the surgery, medication and so forth, she could still have seizures after she's taken off her meds. That was a little unnerving. We were under the impression, based on the doctors' telling us, that since the tumor is gone, and that the tumor was causing the seizures, that the seizures would stop. Well, according to their research "sometimes" the seizures don't "completely" go away. I'm wondering if they have to say that because they just can't be 100% sure that Katie will be seizure free. Anyway, we just sped past that with Katie. Our prayer is that she will be seizure free.
Back to the VEEG--> If the results of that test are OK, then the doctor will consider gradually taking her off the meds.
We were able to visit with the Conns while we were up at the hospital. Justin had his surgery. It looks as though they only had to do the single surgery and while we were talking with them, the nurse came and got them. They were able to see Justin for a few moments between the surgery and ICU. Keep them in your prayers and we'll update his recovery as we get news.
Another thing he said, and we tried not to make a big deal out of this in front of Katie, is there is a possibility that, even after all the surgery, medication and so forth, she could still have seizures after she's taken off her meds. That was a little unnerving. We were under the impression, based on the doctors' telling us, that since the tumor is gone, and that the tumor was causing the seizures, that the seizures would stop. Well, according to their research "sometimes" the seizures don't "completely" go away. I'm wondering if they have to say that because they just can't be 100% sure that Katie will be seizure free. Anyway, we just sped past that with Katie. Our prayer is that she will be seizure free.
Back to the VEEG--> If the results of that test are OK, then the doctor will consider gradually taking her off the meds.
We were able to visit with the Conns while we were up at the hospital. Justin had his surgery. It looks as though they only had to do the single surgery and while we were talking with them, the nurse came and got them. They were able to see Justin for a few moments between the surgery and ICU. Keep them in your prayers and we'll update his recovery as we get news.
Monday, March 10, 2008
1 Year Checkup
This Wednesday we take Katie to the doctor for her one year from surgery checkup. It's hard to believe that at this time a year ago we were preparing for the drama of brain surgery. It seems trivial to me to say that, I wasn't the one having the surgery. With Katie not remembering so much about it, we'll never fully know what she went through in her mind. However, that's the blessing of it, who would want to remember all those details. Still, Sandra and I remember all that we encountered as we were there with Katie, and of course, as parents, if need be, we would do it all again for her. Meanwhile, Katie just goes on, not totally like it never happened, but knowing it's in the past and that the Lord blessed her tremendously.
Our hope is that this will be the point when we will be able to start weening Katie off the medication. She has done so well at remembering to take it, it may seem strange to her as her
regiment changes over the next couple of months. We really don't know how the changes will work yet. Nevertheless, she's ready to be done with the meds, so I'm sure she will adjust fine.
By the way, Wednesday is the day that Justin Conn will be having his surgery. He's the son of Michael's Bible teacher at school. We're hoping to stop by and visit with the Conns while we're there.
I'll give the results of Katie's checkup in the next post.
Our hope is that this will be the point when we will be able to start weening Katie off the medication. She has done so well at remembering to take it, it may seem strange to her as her
regiment changes over the next couple of months. We really don't know how the changes will work yet. Nevertheless, she's ready to be done with the meds, so I'm sure she will adjust fine.
By the way, Wednesday is the day that Justin Conn will be having his surgery. He's the son of Michael's Bible teacher at school. We're hoping to stop by and visit with the Conns while we're there.
I'll give the results of Katie's checkup in the next post.
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