Well, It has been a little over 2 years and 8 months since Katie's journey with seizures and a brain tumor began. Tonight she took her last dose of anti-seizure medication. It has been an amazing journey of ups and downs. Though the down times were scary as we met them, the up times have outnumbered the down times by far. We praise the Lord for His blessings and we are confident that He will continue to pour them upon Katie.
I would like to thank everyone for the prayers and comments on this blog through this whole time. I have been copying the blog on my computer and will print it up and put it in a notebook. The book will have all of the entries, including the many comments that friends and family made. This book will be a reminder to our family, especially to Katie, of how the Lord led in every moment of her journey. I may update it occasionally with info on Katie.
By God's Grace and for His Glory!
Saturday, October 3, 2009
Thursday, June 18, 2009
Recent Video EEG clear / Weaning off Medication
Well, we heard the news we've been waiting for... Katie's video EEG came back 100% clear! We will now begin to wean her off her medication. This will take about 4 months to complete. During this time of transition, we have to take extra precautions while her body (specifically, her brain) gradually gets used to being medication free. It will be possible for seizures to be triggered as a result of any trauma or extreme tension. She will need to be monitored more closely during times when she is more susceptible to injury (i.e. - bath tub, pool, riding her bike, etc.). The doctor stressed the importance of not allowing sleep deprivation. These types of precautions are important for us to take seriously, yet it is also important not to over concern Katie in such a way as to influence her to hesitate in living a normal life.
A concern we are dealing with now is Katie's post surgery memory. When the doctor asked Katie if she remembered anything about the surgery, Katie began to break down emotionally. The doctor's assistant said she would mention this to the psychiatrist that tested Katie pre-operative. This is a matter that I have studied and am prepared to deal with from a Biblical perspective. This is an amazingly difficult matter for a young person to handle. However, we are confident that just as God's grace was sufficient during the time of the operation itself, His grace is more than sufficient to deal with the emotional effects of the trauma. Please pray for her and her parents as we help her with this need.
Our key verse that we will hold to is Philippians 4:13 "I can do all things through Christ which strengtheneth me."
By God's Grace & For His Glory!
A concern we are dealing with now is Katie's post surgery memory. When the doctor asked Katie if she remembered anything about the surgery, Katie began to break down emotionally. The doctor's assistant said she would mention this to the psychiatrist that tested Katie pre-operative. This is a matter that I have studied and am prepared to deal with from a Biblical perspective. This is an amazingly difficult matter for a young person to handle. However, we are confident that just as God's grace was sufficient during the time of the operation itself, His grace is more than sufficient to deal with the emotional effects of the trauma. Please pray for her and her parents as we help her with this need.
Our key verse that we will hold to is Philippians 4:13 "I can do all things through Christ which strengtheneth me."
By God's Grace & For His Glory!
Thursday, May 7, 2009
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