All Clear!

I've been so busy that I haven't taken the time to update the blog. Today we cancelled the appointment for the video EEG. The doctors told us that if Katie didn't have any symptoms over the weekend, that we should cancel. The weekend was clear of symptoms, so we cleared the appointment. Thanks again for all the prayers.

CT Scan Negative / Video EEG Questionable

Well, we are happy and confused all at the same time. The CT scan came back negative for any fluid build up - no pressure in the brain. That's really good news. Sandra talked with the neurologist's assistant today. She said that if Katie does not have any headaches, dizziness, or rapid eye movement between now and Monday, we are to call and cancel the video EEG. If she has not had any of these symptoms since last Sunday and Monday, it would be a long shot for her to have them during the 23 hour video EEG - and those symptoms are what they would look for.

If there are no symptoms, then we will decide how to pursue the eye problems if they reoccur. At that point we'll probably have her eyes checked.

So, for now we'll wait and see. I think the neurologist just wanted to make sure there were no problems related to the brain surgery first, to rule that out. I think that made us a little more nervous than maybe we should have been. However, as the neurologist said, its better to know for sure, than to be in doubt.

Thank you all for your prayers.

CT Scan and Possible Video EEG

Please see the previous post for details on events leading up to today.

Sandra called the neurologist today and left a message with his office about Katie. Within minutes, the head assistant to the doctor called Sandra back. Katie has a rush appointment tomorrow at Children's Hospital to have a CT scan. The immediate concern is that Katie may have a fluid build-up in her brain. This of course would not be good, to say the least. It is a possibility due to "foreign objects" being in her brain - post surgery.

After the CT scan, depending on what that shows, they want to schedule her for another 23 hour video EEG. This could very well take place this weekend. As I stated in the last post, the eye movement is an almost sure sign of seizure activity, but the possibility of fluid in the brain is scary and potentially very dangerous. We were told to keep a close watch on her tonight and that if there is any more eye movement like there was Sunday night, to take her to the hospital emergency immediately. Katie seems to not be aware of what her eyes are doing. All she knows is that her eyes have been bothering her. She says they have been doing "funny things" and feeling weird.

Please pray for Katie. When we tell her today about what she has to do, she is going to be very upset at first. Now that she's older and has experienced what she has in the past, she understands how it all works and knows it is very scary.

We'll update the journal as we get results and information. Thank you for praying!

Possible Concerns / Please Pray

Well it has been a while since I've posted anything on Katie's journal. For the most part she's been doing really well. The medication has seemed to be side-affect-free and Katie has been busy with school and church and just doing fine.

Well, last night while I was preaching, I looked over at Katie (she was sitting in the second row, off to my right) and she was rapidly moving her eyes left and right. I noticed her early on in the message and she was sitting there, paying attention, taking notes, etc. Then I noticed that she was just sitting still, making those rapid eye movements. At first it tickled me and I had to look away from her to keep myself from letting out a little burst of amusement. Then about 30 seconds later, I looked at her again and she was still doing it. I immediately felt a sense of panic come over me and without hesitation, I looked at her and said, "Are you okay?" I repeated myself because at first she didn't respond. She nodded her head, indicating that she was okay. I went on preaching.

I have since found out that while she was visiting with her grandma last Friday, she had done the same thing. Today, Katie experienced severe dizziness and headache at school. She came home from school and did her homework, but she was very run down. Tonight Sandra told me that Katie told her that in recent days she had caught herself doing it on more than one occasion.

Needless to say, Sandra and I are now concerned that something abnormal is going on. These are all signs of seizure activity. Sandra plans on calling and consulting with the neurologist tomorrow.

So, at first we thought it was just a little thing, but now we're wondering. Please keep Katie in your prayers. We will make updates as we find out some answers.

Thanks!