The visit with the doctor went well. However, we received some new and different information than what we thought we were going to hear. Rather than beginning to gradually take Katie off the medication, he said to keep her on the current dose until after another Video EEG. Yes, that is the 24 hour EEG where Katie and mom and dad get to spend the night and monitor brain waves. YIPEEE! The doctor said that the regular EEG Katie had back in November doesn't give them enough information to make a medication decision. The VEEG will give them the proper information concerning possible seizure activity.
Another thing he said, and we tried not to make a big deal out of this in front of Katie, is there is a possibility that, even after all the surgery, medication and so forth, she could still have seizures after she's taken off her meds. That was a little unnerving. We were under the impression, based on the doctors' telling us, that since the tumor is gone, and that the tumor was causing the seizures, that the seizures would stop. Well, according to their research "sometimes" the seizures don't "completely" go away. I'm wondering if they have to say that because they just can't be 100% sure that Katie will be seizure free. Anyway, we just sped past that with Katie. Our prayer is that she will be seizure free.
Back to the VEEG--> If the results of that test are OK, then the doctor will consider gradually taking her off the meds.
We were able to visit with the Conns while we were up at the hospital. Justin had his surgery. It looks as though they only had to do the single surgery and while we were talking with them, the nurse came and got them. They were able to see Justin for a few moments between the surgery and ICU. Keep them in your prayers and we'll update his recovery as we get news.
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